•She is being referred to a pediatric cardiologist for a heart echo cardiogram to make sure her heart condition is fixed. 3 doctors (2 in China, one here) said they can't hear anything but want to have it checked out. On her medical papers it said she had an enlarged RV so that needs to be checked out. Scheduled.
•She is being referred to speech, occupational and physical therapists.
•She is having a cervical and spine xray to rule out a common vertebrae deformity in kids with Down Syndrome. (I only knew about this from Gracie having hers done.) This one is a little scary if she has this vertebrae deformity, she has a higher likelihood of fracturing this vertebrae. So no more jumping on the trampoline until it is checked. Scheduled
•She is being tested for leukemia that is common in kids with Down Syndrome. This will also give them a baseline of her blood counts so they can monitor her more closely.
•She is being tested for every parasite, lead and all the other international adoption fun stuff.
•She is being tested for thyroid conditions that are common with Down Syndrome. She will need to be checked every 6 months for this routinely.
•She is going to be tested to determine whether she has Mosaic Down Syndrome or just Down Syndrome.
•She had her ear wax cleaned out of both ears. That was a fun treat, she kept trying to pull out the cotton ball they put in to hold in the solution to soften up the wax. She did so well didn't even cry and only fussed a little after being draped in two towels and warm water being sprayed in her ears. After they got most of the wax out they tested her hearing and it passed!
•She received three shots in her leg that have left her with a little fever, a little miserable and redness on one leg.
•She is in the 37% for weight and 3% for height and her BMI is 93% which I don't count any of it since its compared to average girls and not girls with down syndrome. I'll have to ask next time if they can do it compared to average for down syndrome children. Also she loves to eat so we have to watch what she eats and how much.
- She needs to see the dentist. Which is scheduled.
- She has been referred to the opthamalogist to have her eyes checked. Sometimes I think she can see and other times not sure. She does put her head really close to her food but she can see far away things too so we will be getting this checked out. She also has blocked tear ducts that will be checked to see if she needs surgery.



Sounds like deja vu!!!
ReplyDeleteGlad to hear all is going well so far!!! We still haven't been able to get the ears cleaned out. Long story to that!!
Got your email, hope to respond tomorrow!!!
We're right behind ya... going for our first appt. on Thursday! What troopers our girls are and what gifts from God!
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